Thursday, February 20, 2014

Off Line For A Bit...

I am in Lawton, OK for the graduation of my son from Army Basic Training. Don't know if I'll be able to post or not. We'll see...otherwise I'll be out until NEXT Tuesday!


https://www.facebook.com/pages/Bravo-Battery-1-31-FA-BCT/219259758111402?fref=ts


Saturday, February 15, 2014

Breast Cancer ANGER


 

From the first moment my wife discovered she had breast cancer, there was a deafening silence from the men I know. Even ones whose wives, mothers or girlfriends had breast cancer seemed to have received a gag order from some Central Cancer Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this blog…


Many of you saw this on Face Book a few days ago:

Then you followed the obscene requests by numerous individuals who thought that, while pictures of naked women, scantily clad women, women posing suggestively, and pure porn on Face Book is OK, fine, very fine, wonderful, just what I needed, and all in fun; women showing the results of breast cancer surgery was “naughty”.

You cannot imagine my rage – though some people could because there was such a back whiplash that I hope the people who thought that the bravery of this woman was obscene have to pick their heads up down the street.

Everyone knows but no one says that if she had posted a photo of herself PRIOR to her surgeries that the number of downloads would have busted Face Book’s servers.

The Face Book corporation FINALLY got it right: “The social networking site has left the images intact, however, because their intent is clearly educational and not sexual in nature (although Facebook famously hasn't been so supportive of mastectomy patients in the past).”

I applaud this woman with every ounce of my spirit. I applaud Face Book for making the right choice.

Words fail me when I contemplate the inhuman monsters who cried “inappropriate” and those who defriended this woman – the very same people who had friended her…I’d written something else here but I don’t think that it can go on Face Book, either…prior to her surgeries.

Sometimes Humanity appalls me. Then I think of the bravery of Beth Whaanga, of my wife, of the millions of other breast cancer survivors and their support groups…and I relax, realizing that there ARE many good people in this world.

Saturday, February 8, 2014

The Reconstruction Era – Part 10














https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgqgzg-PZzB9tVaoqFHXpOfkCYyIcZVbT4WIUYgX04QDPjQKNl_MPxQaroUgwjTE_Wm-LjNvngb1PR_3xHyJOj07GXmgzbK6JlyKx77RJKQq26StE8vZDmVzr-wRW6w8xqdSQ1BaHF7Fv0/s1600/What+is+lymph.png
From the first moment my wife
discovered she had breast cancer, there was a deafening silence from the men I know. Even ones whose wives, mothers or girlfriends had breast cancer seemed to have received a gag order from some Central Cancer Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this blog…“It appears that the next event is breast reconstruction!”


Strangely, there doesn’t SEEM to be much to comment on – except the elusiveness of lymphedema.

On occasion, the area around my wife’s right implant swells. This is the side where the lymph nodes were removed, so while it’s not surprising, how it comes and goes is puzzling.

I did a bit of research (now THERE’S a big surprise!) and found out that there’s nothing out there that’s helpful…

The two subjects – lymphedema and breast reconstruction after mastectomy – are well-covered. But no one seems to have done any research into intermittent lymphedema. “About 7% of women who have had lymph nodes removed will develop some swelling of the arm after surgery, which is usually mild and goes away. Transient or temporary lymphedema can also show up years after surgery. It can be caused by infection or other reasons. This lymphedema is of more concern because it may become permanent. Most women who develop permanent lymphedema do so within 4 years of their breast cancer treatment, but it can also appear many years after surgery…Most women don’t get lymphedema. The majority of women who develop arm lymphedema do so within 4 years of breast cancer treatment. Lymphedema is likely to be permanent, and only a few women will have temporary lymphedema.” (http://www.bccancer.bc.ca/PPI/TypesofCancer/Breast/Rehabilitation/default.htm)

While the MECHANISM of lymphedema is well understood: transport of lymph from an extremity back into the lymphatic system is interrupted the cause of extended lymphedema is virtually unstudied. The interruption of transport has many causes such as injury, infection, disease, or actual removal as in breast cancer surgery.

What is called “temporary lymphedema” when it is disconnected from an immediate injury, is not understood at all. Lymphedema itself is the subject of numerous mythic treatments ranging from taking diuretic pulls (believing that lymphedema is called by water retention); using benzopyrones (which poison the liver) to making ultrasound work NOT as a diagnostic tool but as a special usage that might be likened to the use of “laetrile” during the 1930s through the 1970s: snake oil pure and simple!

Why this craziness?

Because lymphedema – which only happens in 7% of breast cancer mastectomy and axillary dissection patients – doesn’t happen to EVERYONE and so is fairly low on the research grant list.

For those it does happen to – the options are few, though one has held out some sense of promise: lymphatic venous anastomosis. Keep an eye on the Breast Cancer Research RIGHT NOW! posts for the latest news.