Sunday, May 30, 2021

RELATED MEDICAL ISSUES RIGHT NOW! #2: Osteoporosis And YOU! (What???)

From the first moment my wife discovered she had breast cancer, there was a deafening silence from the men I know. Even ones whose wives, mothers or girlfriends had breast cancer seemed to have received a gag order from some Central Cancer Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this blog…
From the first moment I discovered my dad had been diagnosed with Alzheimer’s, it seemed like I was alone in this ugly place. Even ones who had loved ones suffering in this way; even though people TALKED about the disease, it felt for me like they did little more than mumble about the experience. Not one to shut up for any known reason, I added a section to this blog…

The immediate crisis that was Breast Cancer and Alzheimer’s have passed. There are, however ancillary issues like testing and treatments that may not be directly related to BC or A but intersect with them. Harvested from different websites, journals and podcasts, I’ll translate them into understandable English and share them with you. Today: Osteoporosis!


My wife recently had a DEXA Scan (DEXA is an acronym for a truly incomprehensible medical procedure: Dual Energy X-ray Absorptiometry.), though the author of the article, who is a retired med tech, notes, “a mouthful of a term that actually tells a lot about this procedure”…I would argue that it doesn’t mean ANYTHING to a normal person!

So let’s break it down. First of all, it’s a special kind of x-ray. OK, that’s pretty easy. X-rays are something we all understand (I marvel that it’s no longer necessary to “develop the film”. It all pops up on a computer screen now, pretty much instantly!)

“As the scanning arm is moved slowly over your body, a narrow beam of low-dose X-rays will be passed through the part of your body being examined. This will usually be your hip and lower spine to check for weak bones (also called osteoporosis)”.

The doctor looks at the how thick (which is (mostly) what “density” is) and she makes a determination based on what’s normal and what’s not.

There are two scores they give you, the T-score and the Z-score. I'll stick with the more understandable T-score!

The T-score compares your bone density to the BEST bone density for your gender. [For the mathematically inclined: “It is reported as the number of standard deviations below the average, which is based on the bone density of a healthy 30-year-old adult.”] If it’s more than -1 your bone density is normal. Between -1 to -2.5 shows something called “osteopenia” means it’s less dense than it SHOULD be, but not disaster yet. You are at some risk of developing osteoporosis. But if it’s less than -2.5 (-2.7, -3.0, -3.2, etc.) that generally means osteoporosis.

What’s osteoporosis? Simple: It’s the weakening of bones in the body. It is caused by lack of calcium deposited in the bones. That means that when you DO smack a bone and you have osteoporosis, the bone’s more likely to break – rather than just getting a bone bruise.

What can you do if you have osteopenia (pre-osteoporosis) or actual osteoporosis? Well, listen to your doctor for one! But what about BEFORE the emergency?

Include plenty of calcium in your diet.
Good sources of calcium include dairy products, almonds, broccoli, kale, canned salmon with bones, sardines and soy products, such as tofu. If you find it difficult to get enough calcium from your diet, ask your doctor about supplements.

Pay attention to vitamin D.
Your body needs vitamin D to absorb calcium. Good sources of vitamin D are salmon, trout, whitefish and tuna. Also, mushrooms, eggs and fortified foods, such as milk and cereals, are good sources of vitamin D. Plain old being out in the sun also contributes to the body's production of vitamin D.

Include physical activity in your daily routine.
(Isn’t it WEIRD how doing exercise can help you feel better and live longer?) Weight-bearing exercises, such as walking, jogging, and climbing stairs, can help you build strong bones and slow bone loss.

Avoid substance abuse.
Don't smoke. Woman should avoid drinking more than one alcoholic beverage a day. Men? No more than two alcoholic drinks a day.

There’s stuff you can do before an emergency. And if you’ve hit the panic button? The same things are helpful, PLUS doing what the doc says!

Resources: https://www.verywellhealth.com/what-is-a-dexa-scan-190167, https://www.mayoclinic.org/healthy-lifestyle/adult-health/in-depth/bone-health/art-20045060
Image: https://encrypted-tbn0.gstatic.com/images?q=tbn:ANd9GcQWFDJVgpz0G9kdb-eRXgRxMiv-Qz-Moaiw9w&usqp=CAU

Sunday, May 23, 2021

ENCORE #159! – After the Drama...Nothing But Hassle

From the first moment my wife discovered she had breast cancer in March of 2011, there was a deafening silence from the men I knew. Even ones whose wives, mothers or girlfriends had breast cancer seemed to have received a gag order from some Central Cancer Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this blog…That was four years ago – as time passed, people searching for answers stumbled across my blog and checked out what I had to say. The following entry first appeared in March of 2017.

I confess that from the moment my wife was diagnosed with breast cancer, life whirled out of our control. Following the initial biopsy, tears, surgery, chemotherapy, and checkups – all of which were high drama – things calmed down considerably as time blurred the clear recollection of that drama. During that time, my wife jammed her hand against a wall, and we set off on a second, albeit much less exciting journey called Lymphedema.

Six years later, the adventure has become more of a “plodding slog” than anything else and has been, to put it mildly, a pain in the…well, let me explain a teeny bit of it.

MONTHS ago, my wife ordered a new “overnight sleeve” to help control lymphedema.

She has ordered compression sleeves, gloves, and other materials from them in the past and aside from being ridiculously difficult to get to (the place is literally buried in a poorly marked warren of industrial park businesses), she’s often been able to get what she needed.

I say often because there have been problems with the garments being incorrectly sewn, too tight, cut wrong, and other, less critical problems.

This past time, this company has created NOTHING buy hassle for her/us. From claims that “insurance doesn’t pay for this” to, “yes, yes, we ordered it but it hasn’t gotten here yet”, the sleeve was so mired down in what I can only think of in the most polite of terms as office confusion, that we ordered a “non-custom-made” sleeve from an online company.

It arrived promptly and while there’s nothing inherently wrong with it, it’s a sort of “one-size-fits-these-measurements” kind of thing. It’s also uncomfortable (in its defense, NO compression sleeve can ever be said to be comfortable!) and while it’s currently the tail-end of winter and sweltering isn’t a problem (it’s 8°F (-16°C) this morning), it will become a problem in August. It’s also huge.

I don’t exactly recall how big the first one was, but it didn’t seem to be this big!

At any rate, this entire journey into the hideous world of post-breast cancer lymphedema might have been prevented half-a-decade ago if my wife’s doctor had begun immediate treatment after she jammed her hand against a wall on Thanksgiving day in 2011. THAT doctor didn’t “believe in” lymphedema treatment and so did nothing. What were WE to do? We knew less about breast cancer and lymphedema than he did, so we had no idea we should advocate for more aggressive treatment. (See: http://breastcancerreaper.blogspot.com/2012/09/a-friend-scare-minnesota-state-fair-one.html)

No one had bothered to mention lymphedema and the possibility of the “cure becoming worse than the disease”. Because at THIS point, there’s nothing anyone can do…

Whoops, did I say nothing they CAN do? I meant to say that NO ONE IS DOING ANYTHING FOR POST-MASTECTOMY/NODE-REMOVAL BREAST CANCER PATIENTS WHO HAVE EXPERIENCED LYMPHEDEMA!!!! (http://breastcancerreaper.blogspot.com/2012/11/lymphedema-treatment-past-presentis.html)

They have new surgical techniques to PREVENT it, which I reported on here: http://breastcancerreaper.blogspot.com/2016/08/breast-cancer-research-right-now-48.html, but is there anything that can TREAT it?

That will be my next BC Research RIGHT NOW!!!

Image: https://c2.staticflickr.com/6/5527/10893068965_1d328e8f71_b.jpg

Sunday, May 16, 2021

GUY’S GOTTA TALK ABOUT…Alzheimer’s #36: Does It Even AFFECT Me Now That Dad Is Gone?

Dad’s diagnosis of Alzheimer’s stayed hidden from everyone until I took over the medical administration of my parents in 2015. Once I found out, there was a deafening silence from most of the people I know even though virtually all of them would add, “My _____ had Alzheimer’s…” But there was little help, little beyond people sadly shaking heads. Or horror stories. Lots of those. Even the ones who knew about the disease seemed to have received a gag order from some Central Alzheimer’s Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this part of my blog…


The weird thing is that Alzheimer’s still affects me even two years after Dad passed.

“How the heck can that be?!?!?” you blurt.

Well then, how about the Academy Award Oscar statuette for Best Actor? That went to Anthony Hopkins. For playing a man who “…refuses all assistance from his daughter as he ages. As he tries to make sense of his changing circumstances, he begins to doubt his loved ones, his own mind and even the fabric of his reality.” It’s a very pretty way of saying that he has Alzheimer’s. In fact, the Wikipedia entry as well as IMDb carefully don’t mention anything about Alzheimer’s – they talk coyly about “progressing memory loss” and “He has dementia and constantly forgets important life events and where things are around his flat, including his watch, despite the fact that he regularly hides it in the same place…he believes his recent caretaker stole his watch and that he will never move out of his flat. He doesn't recall his daughter’s divorce...[she] tells him that if he keeps refusing to have a carer, she will have to move him into a nursing home…”

OK, with the carful exclusion of the “A” word (I suppose it’s a French-British film, and their elevated manners don’t publicly mention such gauche things in polite company), using the words “memory loss” and “dementia”.

Wikipedia defines dementia: “a set of symptoms caused by some sort of brain damage, usually brought on by disease, though it can also result from injury…increase in problems with memory, thinking, and behavior…eventually affecting the ability of a person to do what we would consider everyday activities…emotional problems, difficulties with language, and decreased motivation…change [in] a person’s usual mental functioning…faster than what we would expect in normal aging. In 2013, dementia was reclassified as a major neurocognitive disorder, with varying degrees of severity, and with all KINDS of causes.”

Wikipedia defines Alzheimer’s as: “a neurodegenerative disease that usually starts slowly and progressively worsens…the cause of 60–70% of cases of dementia…common early symptom is difficulty in remembering recent events…As it advances…problems with language, disorientation, mood swings, loss of motivation, self-neglect, and behavioral issues…withdrawal from family and society…eventually, bodily functions are lost, speed of progression varies…typical life expectancy following diagnosis is three to nine years.[7][11]

But we don’t got no manners here in the Colonies! The story is about a man in the middle to late stages of Alzheimer’s. But for some reason, the Brits and French can’t mention that – as if by whispering around it and giving it a sort of non-descript, generic name like “dementia”, they can pretend it’s an unknown, unexplainable thing, so they don’t have to really deal with it…I don’t know if the “A” word is ever used (I haven’t seen the movie yet…and may not EVER. I lived through it once; watching in Technicolor with all the breaks cut out may be more than I can handle.)

At any rate, it seems that even though I should be “done with it”, I’m not, and the startling win by Anthony Hopkins over Chadwick Boseman shows exactly how much Alzheimer’s is on the mind of an aging population that STILL can’t bring themselves to talk about without tippy-toeing around.

I find that it inexplicably makes me angry, but still not as angry as the disease makes me…

Image: https://austinmoms.com/wp-content/uploads/2018/11/austin-moms-blog-i-hate-alzheimers-1.png

Sunday, May 9, 2021

ENCORE #158! – “Hey! Get This Prescription Drug From Your Doctor!!!!!”

From the first moment my wife discovered she had breast cancer in March of 2011, there was a deafening silence from the men I knew. Even ones whose wives, mothers or girlfriends had breast cancer seemed to have received a gag order from some Central Cancer Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this blog…That was four years ago – as time passed, people searching for answers stumbled across my blog and checked out what I had to say. The following entry first appeared in October of 2017…


Recently, I saw this commercial on TV: https://www.youtube.com/watch?v=YFpSmeSYydM

It was advertising Neulasta – the drug my wife was given after her aggressive chemo treatments. (https://breastcancerreaper.blogspot.com/2019/05/encore-108-neulasta-whats-it-do-plus.html)

Most of you have noticed that in recent years, prescription drug ads have started popping up on TV. In fact, they are doing MORE than just “popping up”. According to the article I referenced above, there are “80 drug commercials every hour of every day on television.” Really? Now, I’m sure that includes Aleve, Bayer, and the host of others, like Prevagen (which supposedly increases memory retention in adults (and which is, sadly, seems to be aimed specifically at patients and family of Alzheimer’s patients). However, how many of us are getting tired of the Humira – which can, apparently, treat ulcerative colitis, plaque psoriasis, rheumatoid arthritis, and Crohn’s Disease? I see THAT one constantly!

Also, the multiple alternatives to the diabetic injections my wife took of Lantis – Toujeo, touting how fabulous it is compared to the first one. There ARE other versions of insulin – 37 of them here (https://www.drugs.com/drug-class/insulin.html).

What the fart? Why would they do this? The answer is very simple: $$$MONEY$$$.

According to this article, which was written six years ago, “For every dollar spent on ads for drugs, over four dollars in retail sales are garnered. A May 2011 study showed that new drugs that feature direct-to-consumer advertising are prescribed nine times more than their new counterparts that lack consumer advertising.”

Currently: “In 2012, spending for pharmaceutical TV ads was the 12th-largest category. By last year [2016], drug ads were sixth…” As well: “In 2016, the top three ads based on total spending were Lyrica, with $313 million in spending; rheumatoid arthritis drug Humira at $303 million; and Eliquis, a treatment for a type of heart arrhythmia, at $186 million, according to Kantar.”

While the drug lobby argues that it’s “educating consumers”, I have no doubt that they are giggling behind their hands while reviewing their bank deposits on their laptops at night in their multi-million dollar mansions…I suspect that while Congress battles itself over health care programs, the Health Care Industry is doubled over in hysterical laughter at their cleverness in shifting the focus off of them and to the evils of being Republican or being Democrat.

“The cost of Lyrica…is about $400 for 60 capsules, for example. Critics say the ads encourage patients to ask their doctors for expensive, often marginal — and sometimes inappropriate — drugs that are fueling spiraling health care spending.”

We all know exactly what happened to drug companies who hiked the cost of the pen-delivered epinephrine (https://www.consumerreports.org/drug-prices/epipen-alternative-that-costs-just-10-dollars/), right?

Nothing. The story disappeared from the news as soon as the Democrats and Republicans started fighting about health care. And South Korea. And terrorism…strange, that, eh?

How about Martin Shkreli? He’s NOT being tried for hiking the price of an AIDS treatment drug from $13.50 per pill to $750 per pill (paid for by insurance companies who then hiking insurance premiums…); he’s going to go to prison for defrauding his ALREADY fabulously wealthy investors. Not REAL people, but the glitzy-fritzy Rodeo Drive set. NOT for allowing those disgusting AIDS patients to die, but for making his investors have to dig out a bit more pocket change for that pearl-handled, battery-powered, mini-Maserati for the grammar school graduate…

Does this disgust you as much as it does me? I have no trouble with funding the research that CREATES new and effective drugs. I have all kinds of trouble with the Top-Of-The-Heap executives who profit while riding on the backs of normal people who have normal jobs in the companies that produce these drugs.

You know what I’m gonna do about it?

Continue to pay. Continue to watch TV. Pray that Jesus comes to take us Home soon…

Image: https://c2.staticflickr.com/6/5527/10893068965_1d328e8f71_b.jpg

Sunday, May 2, 2021

ALZHEIMER’S RESEARCH RIGHT NOW! #13: Of Algorithms and the Struggle To Define and Treat Alzheimer’s…

From the first moment I discovered my dad had been diagnosed with Alzheimer’s, it seemed like I was alone in this ugly place. Even ones who had loved ones suffering in this way; even though people TALKED about the disease, it felt for me like they did little more than mumble about the experience. Not one to shut up for any known reason, I added a section to this blog…

Every month, I’ll be highlighting Alzheimer’s research that is going on RIGHT NOW! Harvested from different websites, journals and podcasts, I’ll translate them into understandable English and share them with you. Today: “What’s an algorithm and what does it have to do with Alzheimer’s???”


I’ve written on the new methodologies being developed for the DETECTION of Alzheimer’s (Blood tests looking for biomarkers: https://breastcancerreaper.blogspot.com/2021/02/alzheimers-research-right-now-12-blood.html), https://breastcancerreaper.blogspot.com/2020/12/alzheimers-research-right-now-11-new.html, https://breastcancerreaper.blogspot.com/2020/10/alzheimers-research-right-now-10.html, https://breastcancerreaper.blogspot.com/2020/01/alzheimers-research-right-now-5-toxic.html)

I’ve reflected on what the CHANCES are for me of developing Alzheimer’s: “…accept the reality that if you are 60 years old today, the odds of developing Alzheimer’s are 4.8%, or in other words, there is a 95.2% chance that you won’t develop the disease…If you have a first-degree relative with Alzheimer’s disease, your risk of developing the illness is about two to three times higher than someone else your age who doesn’t have a family member with the illness…That puts my chance of developing Alzheimer’s at (using 2.5 times as likely) at 12%. That’s three chances in twenty-five or about one in twelve; twelve and a half to be precise. So, if we put twelve and a half people in a room, I will have Alzheimer’s, eleven others will not, and there will be a grisly murder for someone like Hercule Poirot to solve. Which, being in a writing state of mind, puts an idea into my head…” (https://breastcancerreaper.blogspot.com/2019/10/guys-gotta-talk-aboutalzheimers-26.html)

So, the article that came across my computer today is referenced below. What it does is NOT new research, rather about developing a STANDARDIZED treatment for different kinds of Alzheimer’s. Detecting the biomarkers (stuff in your blood that can tell you something about how sick you are. People who are diabetic have to prick their finger to get a “blood sugar” reading – that’s a “biomarker”.)

What HASN’T been getting easier is figuring out WHAT to do. There are treatments out there – everything from starting a drug regimen (no matter how effective, the attitude with my dad was “trying to do something is better than doing nothing”…) to prescribed exercise and “reading”.

The study here has “…created a new diagnostic biomarker-based algorithm for the diagnostics of dementia…The accurate diagnosis of different types of dementia is frequently complicated and often cannot be set at the early phases of the disease due to the lack of practical and specific diagnostic tools. In addition, the clinical symptoms of patients with various neurodegenerative diseases often overlap and thus, the accurate diagnosis is not always possible.”

What’s an algorithm, though?

“In mathematics, computing, linguistics, and related subjects, an algorithm is a set of instructions, a step-by-step procedure for solving a problem, often used for calculation and data processing. It is formally a type of effective method in which a list of well-defined instructions for completing a task, will when given an initial state, proceed through a well-defined series of successive states, eventually terminating in an end-state. The transition from one state to the next is not necessarily deterministic; some algorithms, known as probabilistic algorithms, incorporate randomness.”

Honestly? A set protocol could be powerful and has a much better chance of success…as opposed to the groping around I saw with my father’s treatment.

Resources: https://medicalxpress.com/tags/algorithm/
Image: https://www.meduniwien.ac.at/web/fileadmin/_processed_/e/1/csm_shutterstock_142671010_4683b6bf13.jpg