Saturday, May 30, 2015

ENCORE #13! – Chemotherapy: One Year Later and GODZILLA vs Breast Cancer


http://voluume.fr/wp-content/uploads/2012/05/Encore-Sessions.jpg
From the first moment my wife discovered she had breast cancer, there was a deafening silence from the men I know. Even ones whose wives, mothers or girlfriends had breast cancer seemed to have received a gag order from some Central Cancer Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this blog…That was four years ago – as time passed, people searching for answers stumbled across my blog and checked out what I had to say. The following entry appeared in August, 2012.

Next Thursday, I’ll be going with my wife to the One Year Appointment. At the end of August, 2011, her chemo was done. Since then, it’s been a regimen of daily pills, bouts of lymphedema and struggles with balancing medications (cholesterol, synthroid, pseudephedrine, and so on).

HOWEVER, it’s also been a year filled with all kinds of joy: haircuts, camping and travelling (which stopped last summer), party times with friends without exhaustion setting in, play time with the grandkids and walks in the park, 25th Wedding Anniversary date to a dinner theater, parting with our daughter, three times to fireworks, and plans for our foster daughter to go to New Zealand. A rich life, to be sure.

NOT that life before cancer wasn’t rich before, but now there’s a new appreciation of life. I don’t take traveling for granted any more. I certainly don’t take CAMPING for granted anymore: the roughness of the terrain, distance to the bathrooms and the bugs and darkness are tough enough for an able-bodied old man like me. They would have been very, very difficult for someone in the throes of chemotherapy! The fact that we could celebrate 25 years together after a hellish year following the initial diagnosis is spectacular!

The worry is much less as well – last summer, every time I went to work, I worried. It made for a pretty bleak time in some ways. I tried to keep my Scandinavian stoicism well-oiled and practiced, but I’m sure the anger, fear and bitterness leaked through (ask my students to see if I managed).

Not this summer! We’re even planning on going to the Great Minnesota Get-Together (for those of you reading this who are not from Minnesota, it’s also known as the Minnesota State Fair) after the One Year appointment to walk about and eat ourselves silly – and probably watch the fireworks show just before we go home (making it four fireworks displays we’ll have seen!)

Life is sweet – but let me add a caveat: life is NOT “the same” as it was before the breast cancer diagnosis of March 2011. Every moment, every event, every laugh, every fireworks explosion is a cause for celebration. Every hug from our grandkids, every tear-inducing laugh during cards, every walk to the park to throw the dog’s rope, every plan we make for the new cabinets and every trip to Target is cause for sighing in wonder at the things that make for life.

I am a blessed man; even with that, I extend my deepest sympathies to those who have lost their mate, their love, their mother, sister, colleague or partner to this scourge. We WILL defeat it. Next August I WILL ride in the 2013 Breast Cancer Ride  [I didn’t do this…sorry…] and I will find am still looking for a T-shirt that has Godzilla stomping out breast cancer!

http://www.supergraphictees.com/wp-content/uploads/new-godzilla-2014-pink.jpg Close enough for government work! Next, the T-shirt!


Saturday, May 23, 2015

BREAST CANCER RESEARCH RIGHT NOW! #33: The Not-So-Thrilling Connection Between Breast Cancer Research and Drug Company Profits...




http://www.actos-cancer-lawyer.com/wp-content/uploads/2012/05/Drug-Money.jpgFrom the first moment my wife discovered she had breast cancer, there was a deafening silence from the men I know. Even ones whose wives, mothers or girlfriends had breast cancer seemed to have received a gag order from some Central Cancer Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this blog…

Every month, I’ll be highlighting breast cancer research that is going on RIGHT NOW! Harvested from different websites, journals and podcasts, I’ll translate them into understandable English and share them with you. Today: http://www.bloomberg.com/topics/breast-cancer

I suppose I should have thought of this a long time ago, but I didn’t. So I’m going to toss this out to you.

Cancer research, specifically the search for drugs to TREAT breast cancer (as well as many other types) is a BUSINESS. The drug companies are doing their work not for Humanitarian reasons (though I have no doubt that some people in companies like Roche, Merck, Pfizer, Amgen, Bristol-Myers Squibb Co., AstraZeneca, Biogen, Sanofi, Clovis Oncology Inc., Baxter Healthcare, and Puma Biotechnology Inc. are “in it” to help others) but to make a buck.

Cold, you say? Perhaps, but this quote might justify such an assessment: “Puma Biotechnology Inc. fell the most in almost a year after reporting results from a breast-cancer drug trial that disappointed investors.”
That monetary assessment of the lives lost, the hope spent, and the effort by the families who “invested” the end of the life of their loved one in the study doesn’t figure in this report.

Just that the investors in the company were...disappointed.

Which statement do you find colder, the one where I said that “drug companies…are ‘in it’ to make a buck” or the one where a business magazine reports that the “drug company…disappointed investors”?
Don’t get me wrong, I am thankful for the drug companies who developed Taxotere (Sanofi), Adriamycin (Ben Venue Laboratories), Cytoxan (Baxter Healthcare), Neulasta Amgen), and Anastrazole (AstraZeneca) – they saved the life of the person I love and have loved more than anyone else on Earth. But they save lives to make money – for their investors.


My point today? I don’t really have one, I guess. I’m just ruminating. I started off looking at breast cancer treatment breakthroughs for today from a different angle. I wanted to see if the business world had a different POV than the science or medical fields. The result was that I was confronted by the hard fact that NONE of these endeavors are pursued out of a driving sense of philanthropy. I knew that, surely. It just never hit me like it did today.


To end on a positive note, I’ll just briefly preview the research I just found with the title of the next Breast Cancer Research Right Now! post: COFFEE PROTECTS AGAINST BREAST CANCER!!!!!!!!!!!!!!!!!!! Yeehaw!!!!!!! Look Out Caribou, here were come!
(http://www.sciencedaily.com/releases/2015/04/150421084531.htm)

Saturday, May 2, 2015

GUY’S GOTTA TALK ABOUT #14…Aches & Pains or ACHES & PAINS!!!!! ?


From the first moment my wife discovered she had breast cancer, there was a deafening silence from the men I know. Even ones whose wives, mothers or girlfriends had breast cancer seemed to have received a gag order from some Central Cancer Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this blog…

I’ll be 58 in a few days and like many folks my age, (besides getting the quarterly invitation to join letter from AARP), I have aches & pains. Sore back, stiff joints, increased fatigue after doing “regular stuff”, pre-diabetic blood sugars, failing eyesight, fading hearing, all the kinds of things we associate with aging.

My wife experiences some of the same things – but there’s a twist now.

When talking about a stiffness here or swelling there, the breast cancer survivor has the added, “elephant in the room” – is the ache or pain caused by breast cancer resurgence or the meds that they have been taking for years?

In other words, are these simple aches & pains, or are they symptoms of the cancer or the anti-cancer drugs, and urge a visit to the cancer clinic rather than the medicine cabinet for some Tylenol? What I think of as ACHES & PAINS!!!!

It seems that there is a certain amount of fatigue that accompanies a woman after successful breast cancer treatment, “Fatigue is a normal response to breast cancer treatments like chemotherapy and radiation therapy, but one-third or more of breast cancer survivors report continued debilitating fatigue long after treatment has ended.”

While the first resource listed below was written before 2011, current research seems to be uncovering even more startling information!

“Pat Christian beat stage 3 breast cancer. But 5 years later, she's still fighting fatigue.  She says, ‘Your body is not the same.  After you go through chemo or radiation, your body is not the same.’ That's why the 57-year old non-profit founder volunteered for a study at Emory Medical School, to see if massage therapy can help breast cancer survivors cope with fatigue.  She was skeptical.  Christian says, ‘When they told me about the treatment, I was, like, right!  I just really didn't think it was going to make a big difference…’”

The fact is that no one told my wife about cancer-fatigue. I’d never heard of it, either.

When we went to a B&B several years ago, part of the package offered a massage session. We took them up on it – my wife had the bath salt and massage, I had the hot rock massage. It WAS fantastic!

But NOW, maybe we need to do it again. We know all about aches & pains and now it appears that ACHES & PAINS!!!! are real. And apparently, those ACHES & PAINS!!!!, clinically identified as cancer-fatigue have a real cause – and a real solution.

We’ll let you know what happens!