Saturday, May 28, 2016

GUY'S GOTTA TALK ABOUT #25: Life as a Caregiver…Relay for Life, May 2016


https://scontent-ord1-1.xx.fbcdn.net/v/t1.0-9/13244751_793005967468131_4583999457445342499_n.jpg?oh=a968d64f45d17242f54ef8b51de4595a&oe=57E24718Robbinsdale Schools Relay for Life raised over $70,000 for the American Cancer Society during an all-night relay attended by the District Superintendent, students, parents, teachers, district staff, former staff, grandparents, and community members. During the luminaria ceremony, I gave the speech below. Halfway through, they turned out the lights. In the picture, I’m the guy WITHOUT the bagpipes…

In March of 2011, my wife was diagnosed with breast cancer. A few weeks later, I started a blog with a line that read, “From the first moment my wife discovered she had breast cancer, there was a deafening silence from the men I know. Even ones whose wives, mothers, or girlfriends had breast cancer seemed to have received a gag order from some Central Cancer Command and did little more than mumble about the experience.

“Not one to shut up for any known reason, I started a blog…”

I’ve been writing GUY’S GOTTA TALK…ABOUT BREAST CANCER ever since. Over two hundred entries on everything from pink wrist bands, to the drugs Regions Hospital used to treat the cancer, to quotes from men, joining the American Cancer Society’s Relay For Life; all the way to starting a science fiction novel called FANTASTIC BREAST CANCER VOYAGE.

Those of you who don’t know me are probably asking yourselves WHY I would write three hundred and seventy pages about breast cancer.

But it was never just about breast cancer.

I wrote about me and how I was dealing with it.

I will never forget the day the diagnosis was confirmed. Even thinking about it now makes my stomach drop into my feet.

My biggest complaint though, was that there was no one there for ME. Now that I’ve finally had time to reflect on it seriously, I realize that I’m glad I didn’t say most of what was going through my head.

The fact was that I DID have support. I had the support of the buddies and brothers and colleagues – and even students in my life. Though in my defense, MY idea of support would have been a long, sit down talk. With me doing most of the talking. But as some of you have by now figured out, that’s USUALLY not how men operate; at least the men I talked to about Liz’s breast cancer.

Number one, was my oldest and best friend – outside of my wife – Jon. I called Jon before I called anyone else on the day Regions’ breast cancer center confirmed the diagnosis and began to work on the treatment. Jon didn’t say much. In fact, Jon NEVER said much. But on the day of the double mastectomy, he sat across from me in the hospital waiting room – my daughter, my sister, my sister-in-law, and my wife’s best friend were all there, too, and I love them for it. But Jon was the dude-in-the-room. Quiet. Strong. THERE.

Of course my dad and brothers were there as well – but they were the quiet types; patting me on the back, shaking their heads, and supporting me in the best way they could do.

There were really too many for me to remember. But I want to remember one man who came to me out of the blue while I was giving tests in the English Computer Lab here at Cooper. Some of you know that I was a science teacher before I was a guidance counselor. Most of my time here at Cooper, I taught ninth grade physical science. Nate was a fourteen-year-old in my science class in 2007. He was funny. Crazy. He had a bunch of friends who were also funny and crazy. They made me laugh often, and usually made my days as a teacher EASIER rather than harder. As they moved on to tenth, eleventh, and twelfth grade, I saw them fairly often – usually giving them a hard time. They still made me laugh.

My wife’s breast cancer diagnosis came in March of 2011. Nate was a senior. I was a guidance counselor then, and of course it got around that I wasn’t really “all there” all the time; spending hours at home and at chemo sessions, doing whatever I could to help Liz recover. One day at the end of a state testing day, Nate came into the computer lab. He stood at the desk and waited until I was done cleaning up, then said suddenly, “Hey, Mr. Stewart.”

“Hey, Nate. What’s up?”

“I just wanted you to know that my mom had breast cancer, too, and she’s OK now.”

I should have warned you ahead of time, that I’m a hugger. I didn’t know what to say, so I stood up in the computer lab, and said, “Can I give you a hug?”

He was only slightly weirded out, but he willingly lifted up an arm. I hugged him, thanked him, and that was it. A few days later, he followed my “Guy’s Gotta Talk…About Breast Cancer” Facebook page. He’s been following it ever since. Not loudly. No comments, but I know he’s there. [Though as a post note, after word got out that I’d done this speech, I got “Likes” on Facebook from his whole crew, plus a huge group of former students!]

I know they’re all there – all the guys who can’t say much because they don’t know WHAT to say when faced with someone they love having cancer.

All this to say that there were guys in my life who cared enough to stand by me QUIETLY.
Last of all, I’d like to point out that there are currently a whole lot of guys NOT so quietly supporting the OTHER caregivers in this very stadium. To YOU all, I thank you! [Bow to them]

Saturday, May 21, 2016

RELAY FOR LIFE 2016 TODAY!!!!!






My wife and I will be walking in the Robbinsdale Schools Relay for Life tonight, so I'll have comments NEXT week as well as the transcript of my "speech" as a caregiver! Later!

Saturday, May 14, 2016

BREAST CANCER RESEARCH RIGHT NOW! #45: Marching Against Breast Cancer!


https://s-media-cache-ak0.pinimg.com/736x/0f/e4/73/0fe473056b0fdd45f8f26c927f78aa70.jpgFrom the first moment my wife discovered she had breast cancer, there was a deafening silence from the men I know. Even ones whose wives, mothers or girlfriends had breast cancer seemed to have received a gag order from some Central Cancer Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this blog…

Every month, I’ll be highlighting breast cancer research that is going on RIGHT NOW! Harvested from different websites, journals and podcasts, I’ll translate them into understandable English and share them with you. Today: http://www.cityofhope.org/blog/breast-cancer-dramatic-advances-create-revolution-in-treatment

“The move to precision medicine in breast cancer means being able to match a patient with the most effective treatment for her specific cancer, Mortimer said.

“‘When you identify which drugs are best for individual patients, you are likely to find more effective treatments for each individual,’ she said. ‘That means less chemotherapy, less surgery and less radiation, which means fewer side effects. This will also help prevent resistance to existing therapies.’

“The surgical innovations offer breast cancer patients a better quality of life during and after treatment, Kruper said. Cryoablation and laser therapy are less invasive than traditional surgery, so patients recover more quickly and with less pain.’”

Wow.

Simply, “Wow.”

How far breast cancer treatments have come in even five years was clearly illustrated when my wife’s best friend, on her diagnosis of breast cancer, had a precise removal of the tumors followed by radiation therapy. No “radical mastectomy” (How apt are the words there! How horrifying the procedure!) for her.


We are creating more and more ways to fight cancer in general and breast cancer in particular.

It occurs to me – unfortunately – that I could be angry. I could go on and be offensive. I could shake my fist at the heavens (or the hells) and shout, “Why did my wife have to suffer so much? Why her?!?!?”

I could do that – until I realize that I have a daughter. A daughter-in-law. Nieces. Nieces-by-marriage. I have a granddaughter. I even have friends. Students. Any number of women – and LET’S NOT FORGET THAT MEN CAN GET BREAST CANCER, TOO!!!! – I know are at risk of this disease. BC research can only move us (as Humanity) forward.

All of them might well live to see a day when breast cancer is eradicated. Made to disappear. “Becomes as smallpox”. At this moment, there is only one subcategory under the Wikipedia entry on “Eradicated diseases”, and that is smallpox.

I would love to live to the day when “breast cancer” has been added.

How about you?

Saturday, May 7, 2016

ENCORE #36! – 12 Inspiring Quotes From Men Who Care For Women With Breast Cancer – or Who Have Survived Breast Cancer Themselves


https://c2.staticflickr.com/6/5527/10893068965_1d328e8f71_b.jpgFrom the first moment my wife discovered she had breast cancer, there was a deafening silence from the men I know. Even ones whose wives, mothers or girlfriends had breast cancer seemed to have received a gag order from some Central Cancer Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this blog…That was four years ago – as time passed, people searching for answers stumbled across my blog and checked out what I had to say. The following entry appeared in June of 2014..

“For people who don't know me, I practiced medicine in Casper, Wyoming for 25 years as an orthopedic surgeon, taking care of families in Wyoming. I've been chief of staff of the largest hospital in our state. My wife is a breast cancer survivor.” – John Barrasso (US Senator, Wyoming)

“Men are incredible caregivers when given the opportunity. But they are underserved in education about support,” – Marc Heyison (Author, Founder – Men Against Breast Cancer)

“At the clinic she went to, they said, ‘Here is some information,’ and it was a tri-fold paper that said what to expect, and to be supportive, he recalled. Well that’s not really enough. You need more than that. I tried to get help, but there was nothing there to go to.” – Chris Wrobel (Husband and caregiver of a breast cancer survivor)

“All of the reality TV I've done has usually been simultaneously an opportunity to create awareness or raise funds for my mom's breast cancer organization.” – Stephen Baldwin (American actor, director, producer and author)

“One of the things we've always tried to do is help others with our story. Whether it's with the infertility issues, whether it's with the breast cancer, we said we're gonna turn these negatives into positives. And if we can help others by sharing our story, then it's worth it.” – Bill Rancic (Husband and caregiver of Giuliana Rancic, Italian American television personality and journalist)

“I have experienced firsthand the tremendous impact breast cancer has on the women who fight it and the loved ones who support them. This is a disease that catches you unaware and, without the right resources, leaves you feeling frightened and alone.”

– Ricardo Antonio Chavira (American actor, Desperate Housewives, and son of a breast cancer victim)

“Men get it. I think us men need you women to help us survive.” – Peter Criss (Drummer from the heavy metal band KISS)

“I learned that it is better to tell people what they mean to us now, rather than to save it for a eulogy at a funeral service.” – David (breast cancer survivor)

“We all know people – mothers, sisters, daughters, neighbors – who have dealt with breast cancer, and it’s wonderful when we know people who are really surviving.” – G Roy Duhé (PhD, breast cancer researcher)

“When we embrace uncertainty, it can be very liberating. If you can accept the uncertainty, it allows you to live life every day.” – Victor Gospodinoff (Caregiver and husband of breast cancer survivor)

+1 “Having cancer gave me membership in an elite club I'd rather not belong to.” – Gilda Radner (Founder of Gilda’s Club)
 
And lastly, something I said that resonated…with me…

“From the first moment my wife discovered she had breast cancer, there was a deafening silence from the men I know. Even ones whose wives, mothers or girlfriends had breast cancer seemed to have received a gag order from some Central Cancer Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this blog…” – Guy Stewart