Saturday, October 27, 2018

ENCORE #97! – Breast Cancer: Liberia


From the first moment my wife discovered she had breast cancer, there was a deafening silence from the men I know. Even ones whose wives, mothers or girlfriends had breast cancer seemed to have received a gag order from some Central Cancer Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this blog…That was four years ago – as time passed, people searching for answers stumbled across my blog and checked out what I had to say. The following entry appeared in January of 2017.

The vast majority of deaths from malignancies occur in sub-Saharan Africa primarily as a result of lack of public awareness of cancer and how it is diagnosed and treated in the setting of a severe lack of resources (physical and personnel) to actually diagnose tumors. To correct this massive health disparity, a plan of action is required across the continent of Africa to bring diagnostic medicine into the modern era and connect patients with the care they desperately need. - See more at: http://www.liberianobserver.com/health/%E2%80%98breast-cancer-curable%E2%80%99

Why should this matter to you? Why should the matter to me?

I COULD wallow in guilt. That would be both easy and satisfying! Instead, I’ve decided I’m going to take a character I’ve created in a science fiction short story, and send him on a few adventures. Most likely, he’ll be travelling with a hard-thinking woman who will become his perfect match. They’ve already started out rebuilding the educational infrastructure of Liberia in the future middle of this century. I’m thinking the two of them need to make a trip to Liberia. Separately – where they’ll meet and butt heads.

The driving issue will be breast cancer education, diagnosis, and treatment in these three West African countries that hold a special place in my heart. From the sale of the stories, I’ll donate the money to breast cancer research in those places…

Liberia suffered through a horrendous time of civil war, starting three years after I left. The First Liberian Civil War lasted seven years, followed by two years of semi-peace, and then the Second Liberian Civil which lasted for four more years until the women of the country told both sides, “Enough is enough. Be done.”

I can only imagine more than public marches and protests were brought to bear on the men of the country to quit their war. As a result, a woman was elected president and in recent history met with Michelle Obama.

As for progress against breast cancer – well, that’s slow. Most of the country’s infrastructure had been smashed. Even when I was there, the JFK Medical Center had become run down. Apparently it was used by both rebel forces and by international medical personnel during the wars. Of its original four institutions only three remain.

As well, breast cancer detection and treatment face two main hurdles – the first is awareness. When we visited, I think it’s safe to say that medical care in the three countries was roughly equivalent to what we could get in the US in the late 1950s. That include cancer awareness. In the 1950s, cigarette companies touted the fact that “More doctors smoke Camels than any other cigarette” (http://360jokes.com/wp-content/uploads/2011/07/more-doctors-smoke-camels.jpg) Breast cancer was spoken of in hushed voices – if it was talked about at all – because it involved, you know…BREASTS. Despite Howard Hughes, or perhaps because of him, breasts had become dirty and you certainly didn’t talk about them in public!

The attitude toward breasts in Liberia today is similar. But an equally huge issue is treatment of cancers that people DO have. I have documented in this blog the cost it took to rid my wife of cancer. I’ve continued to write because despite the fact that she is five-years-cancer-free, there are countless things she has to deal with as a result. Even here, the divorce/break up rate among women diagnosed with breast cancer has never been studied – though one study found that there was no correlation (https://academic.oup.com/jnci/article/91/1/54/2549274/Marital-Stability-After-Breast-Cancer), it involved a group that may have typically been stable anyway. Clearly more research is needed so that more effective supports might be put in place. I cannot imagine that Liberian men whose wives, fiancés, or girlfriends are diagnosed with breast cancer can find much community support!

At any rate, this is an area that needs study and support for the men and women involved.

Lastly, the kinds of treatment we have available here is most likely unavailable to your average Liberian woman…

Breakthrough, anyone?


Saturday, October 20, 2018

GUY’S GOTTA TALK ABOUT #44…and final GGTA…Breast Cancer…Not the End of the Blog, Just…


From the first moment my wife discovered she had breast cancer, there was a deafening silence from the men I know. Even ones whose wives, mothers or girlfriends had breast cancer seemed to have received a gag order from some Central Cancer Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this blog…

I started this blog in March of 2011 – seven and a half years ago. During that time, this blog grew from just talking about “my feelings” to looking at breast cancer research and breast cancer around the world. I investigated the drugs that my wife had to take, as well as talked about the aftermath of eventual breast reconstruction.

Breast cancer actually spread until it had infiltrated every aspect of our lives – the lifestyle mimicking metastasized cancer, I guess.

But as I expanded into different subjects and my feelings about them, I started to gain some wisdom. I started to realize that encouragement was important; I stopped writing my fictional re-imaging of Isaac Asimov’s novel, FANTASTIC VOYAGE (which wasn’t, in fact written by him, but by someone named “Harry Kleiner, based on a story by Otto Klement and Jerome Bixby…Bantam Books obtained the rights for a paperback novelization based on the screenplay and approached Isaac Asimov to write it…” (Wikipedia) He did, the book appeared several months before the movie was released and has been associated with his name ever since.

As my wife would say, “Squirrel!” (Referencing the Disney movie, “Up” and the intelligent dog, Dug…This ALSO qualifies as a “Squirrel!” event…)

At any rate, it’s not that my wife’s breast cancer diagnosis and subsequent treatment is in any way “over”, it’s just that other things have grabbed my attention now – as in my father’s Alzheimer’s diagnosis in 2014 (which we didn’t discover until a year later when I gained control of my parent’s medical matters. That’s a story in and of itself but not the subject of this blog.) I started to look at Alzheimer’s the way I’d looked at breast cancer and now my emotional energy is focused there.

NOT that I don’t care about breast cancer any more. I’ll be getting more involved with the “working” side of the school district’s Relay For Life event in May 2019; and we continue to live together with her breast cancer – it’s just become so much a part of our life that it’s not exactly an…event anymore.

The upshot of this is that I won’t be doing this feature except as an occasional bit. It will be going the way of “Feelings, nothing more than feelings…”, the aforementioned FANTASTIC BREAST CANCER VOYAGE, “Reconstruction”, “Somewhere Along The Way”, “Translating the Doctors”, and “Breast Cancer Wisdom”.

So, if breast cancer was your concern, by all means continue to follow for the “Breast Cancer NOW!” which I use to highlight current research and the “Encouragement” entries – the two satisfy the science geek in me and the need for encouragement for ANYONE who walks alongside someone who is dealing with a life-threatening condition. But I’m not going to be venting much anymore. At least not about breast cancer…

If you’re interested, the new order of posts, ending with this one, will be:

Encore (I’ll continue to repost the most viewed posts from this blog!)
Breast Cancer Research RIGHT NOW!
Encore
Guy’s Gotta Talk About – Alzheimer’s
Encore
Alzheimer’s Research RIGHT NOW!
Encore
Encouragement (In Suffering, Pain, and Witnessing Both…)

Thanks for your time!

Saturday, October 13, 2018

ENCORE #96! – Breast Cancer: Cameroon

From the first moment my wife discovered she had breast cancer, there was a deafening silence from the men I know. Even ones whose wives, mothers or girlfriends had breast cancer seemed to have received a gag order from some Central Cancer Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this blog…That was four years ago – as time passed, people searching for answers stumbled across my blog and checked out what I had to say. The following entry appeared in 2016.

In the 1980s, I traveled with an organization to West Africa. I spent three months in Cameroon, so I still follow news about the country. Recently it seemed a natural extension of my reading about Breast Cancer to check the stats regarding the disease in that country.

I found this: “Overall survival rates of breast cancer are 30% at 5 years and 13.2% at 10 years among Cameroonian patients and are lower compared with 90% and 82% respectively at 5 years and 10 years in some developed countries.”

OMG! This is truly horrifying. Where we – justifiably – celebrate the survival of American breast cancer victims, the mortality rate of the women in Cameroon is THREE TIMES ours.

What’s being done? How can we help?

The vast majority of deaths from malignancies occur in sub-Saharan Africa primarily as a result of lack of public awareness of cancer and how it is diagnosed and treated in the setting of a severe lack of resources (physical and personnel) to actually diagnose tumors. To correct this massive health disparity, a plan of action is required across the continent of Africa to bring diagnostic medicine into the modern era and connect patients with the care they desperately need.” (Emphasis mine)

Why should this matter to you? Why should the matter to me?

I COULD wallow in guilt. That would be both easy and satisfying! Instead, I’ve decided I’m going to take a character I’ve created in a science fiction short story, and send him on a few adventures. Most likely, he’ll be travelling with a hard-thinking woman who will become his perfect match. They’ve already started out rebuilding the educational infrastructure of Liberia in the future middle of this century. I’m thinking the two of them need to make a trip to Cameroon. Separately – where they’ll meet and butt heads.

The driving issue will be breast cancer education, diagnosis, and treatment in these three West African countries that hold a special place in my heart. From the sale of the stories, I’ll donate the money to breast cancer research in those places…

As for current work going on there, there does seem to be movement and as you’d expect, it’s in the area of EDUCATION AND AWARENESS. “A recent review using the most recent data available for the entire continent showed that breast cancer was the most commonly diagnosed cancer among women in 2008. There were an estimated 92,600 cases…breast cancer recently overtook cervical cancer as the most commonly diagnosed cancer in several countries in sub-Saharan Africa, including Nigeria, Chad, Sudan, Cameroon, Central African Republic, Niger, Namibia, Congo, Kenya, and Somalia. This change was attributed to increases in the prevalence of breast cancer risk factors associated with urbanization and economic development, such as earlier menarche, later childbearing, having fewer children, obesity, and increased awareness and detection.”

As well, “Worldwide, breast cancer mostly occurs after the age of 50 years. The situation is different in our context where it occurs at a relatively younger age, 46 years. The majority of these cases in our setting are diagnosed at advanced stages of the disease because of difficulties in access to health care among other factors, underscoring the importance of early diagnosis through screening. According to the WHO, breast cancer is responsible for 25% of cancer deaths in the world with the majority of these deaths occurring in the developing countries. Although incidence of breast cancer is lowest in African countries, survival rates are also lowest. The majority of breast cancer deaths, 69%, occur in developing countries.”

A ray of hope? Run for a Cure, Africa has this as its mission: “To Win the fight against breast cancer in Africa by erasing societal stigmas; providing affordable breast cancer screenings, and creating more access to quality breast care. Their vision is to “…turn the current 90% breast cancer mortality rate in Africa into the 99% survival rate.”

So…the fight goes on in places most of us have never heard of. Hallelujah!

Image: https://c2.staticflickr.com/6/5527/10893068965_1d328e8f71_b.jpg

Saturday, October 6, 2018

Encouragement (In Suffering, Pain, and Witnessing Both…) #4: Thoughts On "Brief" Encouragement…


The older I get, the more suffering and pain I’ve experienced; and the more of both I stand witness to. From my wife’s (and many, many of our friends and coworkers) battle against breast cancer; to my dad’s (and the parents of many of our friends and coworkers) process as he fades away as this complex disease breaks the connections between more and more memories, I have become not only frustrated with suffering, pain, and having to watch both, I have been witness to the suffering and pain among the students I serve as a school counselor. I have become angry and sometimes paralyzed. This is my attempt to lift myself from the occasional stifling grief that darkens my days…

Except for Bible passages (which, in my mind, have proven staying power as they’re several thousand years old), I’ve found that I’m not a huge fan of “inspirational quotes”.

When I started researching for this post and typed in “breast cancer inspiration”, the first thing that came up was “20 Inspirational Quotes…” the second was “104 best…”

Don’t get me wrong, I’m not making a judgement here. Inspirational quotes are good for some people. I’m speaking for myself when I say I don’t think inspiration can have a lasting effect on a person struggling with the repercussions of breast cancer.

Consider the following inspirational quote/poster:
https://www.chamberlain.edu/images/default-source/images-for-blog/quote-41.jpg?sfvrsn=0

While in no way trying to minimize Eleanor Roosevelt’s pain, “aplastic anemia…given steroids…[which] activated a dormant case of tuberculosis in her bone marrow, and she died of resulting cardiac failure…” is not breast cancer. I am certain she suffered enough to apply the quote.

But. She did not suffer a radical double mastectomy, chemotherapy, and reconstructive surgery. Someone thought the quote inspiring because of her gender – and of COURSE it’s inspiring! I just don’t believe it carries the weight it would if it was placed in a larger context of a breast cancer story.

Another exception I grant is when the quote comes from a longer work. If you don’t know, the British Christian apologist, CS Lewis married a woman late in life who died from metastatic carcinoma involving the bones in 1960. Lewis kept copious journals and a year after her death, published them under the pseudonym N.W. Clerk. A GRIEF OBSERVED details his devastating grief after her death and his subsequent struggles with his faith. In this case, the quote is rooted in a  much, much longer work and personal struggle. I will grant that as a legitimate quote. Cries of “hypocrite!” notwithstanding, as we deal with breast cancer, as victims, survivors, caretakers, or simple bystanders – in different ways. “Trite” sayings to “encourage” are, I think a dodge for people who don’t know what else to say and so opt to say and send things that, while they come from a good heart, don’t mean much to the person suffering from breast cancer.

I write another blog called POSSIBLY IRRITATING ESSAYS…I’d have to say that this is one of those rather than the regular GUY’S GOTTA TALK ABOUT…