Saturday, September 28, 2013

Round Two: Random Thoughts On Breast Cancer, Reconstructive Surgery, Lymphedema, Pain, Work, Suffering, and Joy

So we had to return to the plastic surgeon this week because one of the expanders DEFLATED!!!!!!!!!!!!!!!!

Daughter noticed first and commented that my wife’s chest looked…wrong somehow. This was after my wife had called to make an appointment for another fill even though the lymphedema around the left boob was still there. Not as bad as at first, but not completely under control. This time around also included FB exchange with my sister – who works at a clinic where lymphedema is CURED.

Apparently there’s no such thing up here in the city we live in. Lymphedema is just something you “live with”. So why can they cure it in a city that is world-renowned for its medical establishment but not here, the home of a premier research university? Is it sheer hubris of the doctors here that they can’t cure it and tell their patients they have to suffer? Is it mindless greed, an attempt by the medical establishment to milk a cash cow until it’s dry (a particularly apropos image in this case)? What? My wife has discussed moving her clinic to that city some 150 miles away if that’s what it takes to get treatment!

At any rate, our discovery of the whole process of the placing and filling the expanders has been piecemeal at best, so I thought I’d present what we NOW know, several months later…

The expanders are tough plastic devices – I can’t say “bags” any more – because they are nowhere NEAR that simple! Checking around, I wasn’t able to find any cross-sections showing HOW the thing is built, but I did find this description on the GOOGLE patent page:

Self-sealing tissue expander and method/US 5066303 A/Abstract

“The self-sealing tissue expander includes inner and outer layers of relatively nonflowable material and a median layer of flowable material, The median layer of flowable material which can include one or more sublayers of flowable material is under a predetermined compression imposed by the inner and outer layers due to a prestressing of the tissue expander shell during formation of the tissue expander. The self-sealing shell seals an opening in the shell wall following removal of an infusion needle. In all embodiments of the invention a needle stop member is provided to prevent the needle that accesses the fluid chamber from passing outwardly of the tissue expander. The need for a septum, a fluid conduit or a special fluid entry opening in the tissue expander shell is thus optional. The shell can also be made relatively more stretchable in some areas than in other areas.”

It was accompanied by this diagram:

This made a bit more sense – if you count the dashed lines as layer of the expander. It would also explain how the doctor said she would just fill another chamber of the expander.

At any rate, that’s what we learned today. Hope it’s helpful!

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