Saturday, October 26, 2013

BREAST CANCER WISDOM 6: From Others and From Life Here…

From the first moment my wife discovered she had breast cancer, there was a deafening silence from the men I know. Even ones whose wives, mothers or girlfriends had breast cancer seemed to have received a gag order from some Central Cancer Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this blog…

I look for inspiration from many places – my wife, my kids, my parents, my brothers and sisters and in-laws and nephews and nieces and students – lots of places. I frequently find it.

What I don’t often find is inspiration with multiple layers.

My inspiration today comes in the life of a man who was diagnosed with breast cancer late in a life that was full of inspiration.

Very briefly and in his own words: “Mr. EDWARD BROOKE (Former Republican Senator, Massachusetts): I'm doing well. Thank you for asking. I did have breast cancer. They removed one of my breasts and took tissue from the other. They also removed about 13 lymph nodes and so far I'm doing well. And I've been working with the Cohen Foundation and Why Me Foundation to get the word out to men that if you have breast tissue, you can have breast cancer.”

In addition to an amazingly active political life and being showered with awards, former-senator Brooke is a strong, masculine beacon for guys who need to talk about breast cancer (that statement remind you of anything?)

He said, “‘I want to produce some male breast cancer awareness on a national level,’ Brooke explains. ‘I'm a very private person, but if I have to give up my privacy to save a life, then I am willing to do that. Because if you have breast tissue, you can get breast cancer. Don't forget that.’”

Inspiring. Powerful. Very much “a man” (complete with a tawdry, very Washingtonesque um…relationship life; he has come out later in life as an advocate for breast cancer awareness.

If you read my other website, you’ll know that most of my reading lies along the lines of science fiction, young adult novels, fantasy, and the occasional mystery. I will be adding to my list Edward Brooke’s 2006 biography, Bridging The Divide: My Life (http://www.amazon.com/Bridging-Divide-Professor-Edward-Brooke/dp/product-description/0813539056). I’ll let you know if I get inspired!


Saturday, October 19, 2013

A Fantastic Cancer Voyage Chapter 2 III

From the first moment my wife discovered she had breast cancer, there was a deafening silence from the men I know. Even ones whose wives, mothers or girlfriends had breast cancer seemed to have received a gag order from some Central Cancer Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this blog…

One of my fondest memories as a kid is watching the movie FANTASTIC VOYAGE. In it, a group of scientists and their ultra-futuristic laser-packing “submarine” are reduced to cell size and injected into the blood vessels of a world diplomat in order to destroy a blood clot in his brain.

What would a FANTASTIC VOYAGE: Breast Cancer look like? I’m going to write a novel here, short chapter by short chapter and I’m going to include the latest research and I’m going to imagine the entire story here for your delectation. If you want to start at the beginning, look left. Scroll down to LABELS. The first one is “A Fantastic Cancer Voyage”. Click on it. Scroll to the bottom and you will find episode on. Let me know what you think after you’ve read the whole thing!

Dr. Olubunmi Nwagbara studied the Reverend Dr. Isamar Noor then said, “I hope so, Reverend. I hope that you’ll be praying to your God that everything will be different after the surgery.”

He nodded and held up his tablet computer, saying, “It’s on my list of things to be praying for.”

She grunted and couldn’t help but smile a bit. Then she nodded and said, “Get out of here. You can join the rapidly growing crowd that will be inside the sub.”

He bowed from the waist after standing – an amazingly accurate and honorable Japanese gesture – and left her office. She stared after him for fifteen seconds, then got back to work. She paused with her requisition list, then made up another list: Herself, Hirini Kenana, Reverend Dr. Isamar Noor. She pursed her lips. The team was decidedly in the opposition’s favor. Not that either of the men would oppose her, but she didn’t like the balance of the group she’d be sliding through the depths of Kim Lin Anzan’s bloodstream and breasts with. In fact, the more she thought about it, the less satisfied she was that so far herself and a couple of men would be the primary passengers on a mission to destroy breast cancer.

She leaned back in her desk chair and stared out at the sleet still whipping the Thirtieth Floor windows. She wasn’t here often, but reserved the place for entertaining important donors, reporters and other politicians. She lifted her tablet computer from the desk, put her feet up and tapped the screen, projecting a list of men and women who’d assisted in experimental picosub surgery in the past. Some of them wouldn’t be able to stand the presence of a religious man – those she eliminated right away. For all his philosophical yammering, the Dr. Reverend made a good foil to Kim Lin Anzan’s Catholic-Buddhist-Hindu-Daoist world view. But she needed someone who would be both tolerant of religion and invested in nanomedicine.

Tough combo because the relative invisibility of the machinery and the electroencephalogram connection made it seem like magic. The right couldn’t tolerate the a-religion of it; the left couldn’t tolerate spiritualization of anything.

Three images finally fell out of the crowd: Dr. Mackenzie Phan,  Machig Rabten, P.A., and Dr. Yameri Niazi. All three were oncology experts, Mac and Machig in breast cancer, Yameri in metastatic breast cancer.

She kept Yameri after only a moment’s thought. There was a good chance they’d meet metastatic cancers on their fantastic voyage through Kim Lin’s body.  She’d need someone capable of both identifying the cancer and devising a way to deal with it. She kept the other two as well, though. Mac was a master at theory, Machig at application.

Besides, it would keep the men in check: four to two.

He intercom tweedled. She activated it from her tablet and said, “What can I do for you Alex?”

Her boss’ image hovered over her tablet for a moment as he looked at her. He scowled for a moment. He opened his mouth then shut it. She frowned and said, “What?”

“I’m coming with you.”

“I’m not going anywhere.”

“You know what I mean.”

“You’re going to add your consciousness to the crowd I already have in the sub.”

“What crowd?” She ticked off the names and he nodded, saying, “Good. You’ll need someone who has politics on the brain amidst all you squints.”

“‘Squints’?”

“Term from my favorite show as a kid – ‘Bones’. It’s what the FBI guy called all your microscope guys – it’s what you always do when you’re looking at your clues. You squint.”

She smiled, nodded, and said, “Perfect. Welcome to the team. The membership is now closed.”

He drew a hand over his forehead and said, “Whew. Now that I took care of that, you can get on to the real work.” He disappeared.

She said to the air, “Politics IS the real work, sweetie, the rest is science and that’s the easy part.”

Wednesday, October 16, 2013

The Reconstruction Era – Part 7b

From the first moment my wife discovered she had breast cancer, there was a deafening silence from the men I know. Even ones whose wives, mothers or girlfriends had breast cancer seemed to have received a gag order from some Central Cancer Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this blog…

“It appears that the next event is breast reconstruction!”

And so, now it IS Wednesday night; calm has settled over the house after a bit of a tense morning and an afternoon of delay and waiting. Those are all “normal” things that go with regular surgeries of any kind whether expected or unexpected.

This one was expected, in fact, this one was the culmination of a long, dark night of my soul. Even as I write this, the doctor is on the phone talking with my wife. Both my wife and daughter have headaches from an afternoon spent in the hospital, but those are fading as the rest of the day progresses toward sunset…

The surgery itself was anticlimactic, as I said earlier. The initial incisions done for the double mastectomy (http://breastcancerreaper.blogspot.com/2011/04/observations-of-breast-cancer-husband.html) provided the entry into the skin over the chest cavity. The plastic surgeon placed hollow, plastic expanders underneath and added cartilage to act as supports for the saline or silicone implants. Over a period of four months, saline injections stretched the skin and made it grow.

Today the expanders were removed and the implants 
settled into their new homes.

While we were waiting, I shared with my daughter my perceptions of this day and the one two years and seven months ago. On that day, me, my son, daughter and wife were surrounded by friends and family; all were anxious, all were warm and caring, all were THERE for us. There was food, laughter, talk, walks, lots of hugs and lots and lots of phone calls.

There was also a lot of terror prowling inside of me. There was anger. There was loathing – both of self and disease. There were hours and hours and hours spent wondering what was next; what the end result would be; how much pain my wife would suffer over the coming days, months, and years. There was a specter over that day casting a shadow long and far ahead. We were going into a place where we knew nothing, could expect nothing, and could only tread with trembling limbs and faint hearts. The end of that day, we fell into bed exhausted, forced to leave my wife to the darkness of night, in the care of strangers, and with only the faint blip of a heart monitor for a companion.

Today, we were cavalier in our attendance on the surgery. The shadow was now behind us rather than before us and as rugged as the trip was, as full of unexpected pits and falls, as terrifying as it was…this day was nothing like that.

We laughed. Joked. Chatted with people online and on the phone. Marveled at technology. Chatted amiably with nurses and doctors alike. Contemplated Diet Cokes and lunches and supper…and all the things that were normal before cancer.

We have, I think, reached The New Normal and now we live there.

As we sat down to lunch while my wife underwent surgery and recovery, my daughter said, “I like this hospital a whole lot more than all the other ones.”

I replied, “And we’ve seen way more than I ever wanted to see, too, haven’t we?”

We agreed and fell into a companionable silence, waiting and eating an (unintentional) abundance of deserts. Once we were done, we headed back to the waiting room. It seemed like moments and the doctor was out, telling us that my wife was in recovery and that she’d been able to…well, the intimate details are a bit TOO intimate, but suffice it to say that the end result was GOOD.

Truth to tell, if anyone had told me that the whole horror of breast cancer would have reached this point 32 months after that horrific day of the diagnosis, I would have been unable to believe it. Knowing full well that not all cancer diagnoses have this same ending and grieving that not everyone can experience this peace, I am here, waiting to listen if you need to talk, thankful for everyone who reads this blog, and willing to continue, because GUY’S GOTTA TALK – ABOUT BREAST CANCER…

Saturday, October 12, 2013

The Reconstruction Era – Part 7a

From the first moment my wife discovered she had breast cancer, there was a deafening silence from the men I know. Even ones whose wives, mothers or girlfriends had breast cancer seemed to have received a gag order from some Central Cancer Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this blog…

“It appears that the next event is breast reconstruction!”

After the leaky expander (http://breastcancerreaper.blogspot.com/2013/09/round-two-random-thoughts-on-breast.html), the doctor decided that she would move up the surgery to replace the expanders with gel implants.

That will be on Wednesday, four days hence.

Unlike the first surgery which was an horrendous, frightening, painful, and nightmarish experience; this seems much calmer. While still immensely painful for my wife, I feel no compulsion to gather forces around us in order to marshall support. My daughter and I will be there that day and will keep the world apprised of events, but it seems so…anticlimactic. My wife goes in for surgery in the morning, that night we’ll bring her home.

So I’m going to postpone writing about the surgery until it’s done and post on Wednesday night.

Until then, we would of course covet your prayers. As with ANY major surgery, there are always small risks. We’d appreciate spiritual support in that way.

So, until Wednesday, I bid you adieu.

Saturday, October 5, 2013

BREAST CANCER RESEARCH RIGHT NOW! 14 The Best From 2013…So Far!

From the first moment my wife discovered she had breast cancer, there was a deafening silence from the men I know. Even ones whose wives, mothers or girlfriends had breast cancer seemed to have received a gag order from some Central Cancer Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this blog…

Every month, I’ll be highlighting breast cancer research that is going on RIGHT NOW! Harvested from different websites, journals and podcasts, I’ll translate them into understandable English and share them with you. Today: http://www.huffingtonpost.com/2013/10/01/breast-cancer-2013-breakthroughs-research_n_3996306.html

Even though 2013 isn’t over – though the car makers started advertising for the 2014s in March – we’ve got here in the HuffPost, a quick overview of the breakthroughs the fight against breast cancer has experienced over the past 10 months.

Positive reading for ANYONE who wants a shot of hope.

I don’t want to downplay this whiff of positive news – I want to point out that while lots of work is being done on treatment, especially of the deadliest forms of breast cancer, we’re still not-so-great on the prevention.

Certainly earlier, safer, and more accurate mammograms are a strong step in that direction. But only ONE of the ten deals with diet and one deals with exercise (based on research done here in my home state, no less!) I’ve touched on exercise here: http://breastcancerreaper.blogspot.com/2012/06/putting-it-all-together-exercise-isnt.html and from March 13 to May 26 in 2012 I did a series on exercise and breast cancer – but not on diet.

Maybe the reason I haven’t gone into diet too much is because there’s SO MUCH HYPE. Maybe I stay away from diet because there’s not enough there that is really, truly QUANTIFIABLE. In other words, where are the numbers? When you tell me that drinking the juice of the acai berry (the source of most of those “This one WEIRD FACT/DRINK/FOOD…” advertising with the shrinking waistline and growing muscles you always see on the side of your research page) will do whatever, I need to see tests that support that.

Another thing you see with the diet approach to cancer prevention is railing against “artificial sweeteners” and food additives.

While I’m absolutely certain that things that we eat and breathe and drink can kill us, you rarely see anywhere near this data that nicotine, tar, chlorine, and every one of the atoms that make up EVERYTHING WE COME INTO CONTACT WITH occurs...uh...in nature. Otherwise we wouldn’t come into contact with it.

Nutrasweet, sodium cyclamate, acetaminophen, even DDT is made up of atoms that occur in nature. Humans lack the skill of manipulating the universe deftly enough to make atoms from nothing – that power is reserved for Mother Nature or God. The things that receive the most abuse as being “man-made” flatters only Humanity. More correctly, the compounds above are assembled by Humans – and not even assembled in their entirety from loose matter.

The one slammed most often, Nutrasweet, has the chemical formula C14H18N2O5  (please note that all of these atoms are found in nature and are the major components of the class of molecules we call carbohydrates and proteins) and is assembled from amino acids (for the geeks out there, the amino acids are L-phenylalanine and L-aspartate. The “L” stands for “levorotated”. Nothing more sinister than the way the molecule is built…

At any rate, the upshot is that I’m going to do a series of blogs now that deal with breast cancer prevention as it intersects the world of what we eat. My suspicion is that instead of blaming chemicals we firmly believe are made by Humans and ipso facto, they are EVIL AND GIVE US CANCER, we might examine the OVEReating paradigm and how Humans were created/evolved to eat certain kinds of things and we now overeat the kinds of things we evolved/were created to eat – and then look at what kind of impact those things have on not only Human life, but on breast cancer prevention.

So…enough for now. See you later!