Saturday, March 25, 2017

GUY’S GOTTA TALK ABOUT…Alzheimer’s #6: Something I Never Heard Before Until My Brother Told Me That There Are THEORIES Why Dad Has “Sundowning Syndrome”















Dad’s diagnosis of Alzheimer’s stayed hidden from everyone until I took over the medical administration of my parents in 2015. Once I found out, there was a deafening silence from most of the people I know even though virtually all of them would add, “My _____ had Alzheimer’s…” But there was little help, little beyond people sadly shaking heads. Or horror stories. Lots of those. Even the ones who knew about the disease seemed to have received a gag order from some Central Alzheimer’s Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this part of my blog…

Basic research into cures, treatments, and palliatives (things that may not cure or treat, but make a victim feel better) has recently gone “haywire”.

At one point, “neural tangles”, present in most brain autopsies seemed to be The Cause.

Then it was “amyloid plaques”, also present in most brain autopsies.

Four months ago, this was published: “Age-related dementias will affect almost 10% of people in the United States, and these conditions place a tremendous burden on such individuals and their families. The most prevalent type of dementia, Alzheimer's disease (AD), causes a devastating and progressive loss of cognition, for which there is no effective treatment or cure. Analyses of the brains of people with AD suggest that the presence of extracellular aggregates of amyloid-β peptides, intracellular inclusions of neurofibrillary tangles rich in microtubule-associated protein tau and neuritic plaques are pathological hallmarks of the disease, yet there is no conclusive link between these observations and the cognitive symptoms. The inability to definitively connect progressive memory loss to biomarkers greatly impedes the quest for effective therapeutic interventions for AD, but enhanced efforts to understand mechanisms of cognitive decline are revealing new avenues for intervention.”

Summed up and condensed, this says, “We have no idea what causes Alzheimer’s or how to deal with it. Oh, and one person in ten will have to deal with this thing.”

Because Alzheimer’s affects so many people – and that it knows absolutely NO BOUNDARIES racially, economically, societally, regionally, or behaviorally – more and more individuals and companies are joining in the research. According to the article below, “So far, confirmation of a subset of the newly identified loci in functional experiments has demonstrated that lipid processing, endocytosis and inflammation might contribute substantially to the development of AD.”

This means that how our bodies process fat; how old cells are absorbed back into the body, and swelling of brain tissue may ALSO play a role in whether or not I will be affected by Alzheimer’s as my father is.

The upshot is that Alzheimer’s is COMPLICATED: in addition to the formation of amyloid plaques and neural tangles – which is where much of the drug research has been aimed and tested – treatment and cure has to ALSO consider how old cells are absorbed back into the body, the swelling of brain tissue, dysfunction of the immune system, disruption in the brain’s physical “circuitry”,  as well as how stress affects the hippocampus of the brain (thought to be the center of emotion, memory, and the autonomic nervous system)…

It’s clear to me after reading this that not only is Alzheimer’s a complex disease, it will also not be affected by a prescription: it involves diet early in life, stress management, and the actual stimulation of the brain along with implantation of electrodes as well as genetics and simply how each Human body acts and reacts to aging.

As to the initial idea for this post, my brother mentioned that he was talking to a nurse who said that another reason for sundowning is that when my dad got home from work each night, he started to depend on my mom to take care of him. Sundowning triggers that “historical helplessness”. While it seems to make sense – in a BIG way – I haven’t been able to find any articles or mentions of it in the lit. That doesn’t negate it as a theory, certainly. It just means that the whole field of Alzheimer’s treatment is growing – if not chaotically, at least in observational and experimental data…


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