Saturday, July 20, 2019

GUY’S GOTTA TALK ABOUT: BREAST CANCER #46…A Heartbeat Away From Our New Normal


From the first moment my wife discovered she had breast cancer, there was a deafening silence from the men I know. Even ones whose wives, mothers or girlfriends had breast cancer seemed to have received a gag order from some Central Cancer Command and did little more than mumble about the experience. Not one to shut up for any known reason, I started this blog…

There were so many things that changed after the initial breast cancer diagnosis. I can’t speak for my wife because while I’ve been here the whole time, I can’t read her mind, either. I don’t know where her thoughts flit from moment to moment.

But, I DO know where my mind has gone.

I can tell you that I act as if nothing’s happened in the past; that there “was no breast cancer”; that everything has been totally normal.

Then, it all comes rushing back – like last weekend when she cut her thumb on one of our new knives. They’re incredibly sharp, and I cut my finger on one the first week we got it. She was using what’s called the “Chef’s knife: has a blade between 6 and 14 inches long and 1½ inches wide, with a curve that becomes more pronounced near the tip.” We were going have dessert after a hamburger and hot dog meal, and she was slicing a new watermelon. She slashed her left index finger near the end and was dripping blood.

I’d had a similar cut earlier, but my wife also has several factors against her – most notably, she has Von Willebrand Disease. Her brother and at least one cousin were born with hemophilia, but she can’t get it because the disease is only survivable in males (it was also called “bleeders disease” and is the absence of a clotting factor in the blood. You imagine the scenario…) At any rate, my wife has, “…a genetic disorder caused by missing or defective von Willebrand factor (VWF), a clotting protein. VWF binds factor VIII, a key clotting protein, and platelets in blood vessel walls, which help form a platelet plug during the clotting process.”

In practice, it means she clots very slowly. So, we headed to the hospital where they stopped the bleeding, cleaned her up, and used skin glue to seal the cut. (In 1980, I took an Organic Chemistry class where the professor shared he was doing research on MAKING skin glue. It didn’t exist at the time, making my wife a direct recipient of the work Dr. Kowanko was doing when he and his colleagues, “glued steaks together to see if they would stay stuck”…)

While we were there, my wife commented, “It’s a good thing it wasn’t my right hand that got the cut.” My daughter-in-law, who was with us for arm support and emotional support (my daughter is seven-and-a-half months pregnant and would have struggled to be her usual staunch supporting self…), asked “Why?”

My wife shared that if she had cut her right hand, her body would have responded by flooding the arm with white blood cells carried by lymph – which is a good thing. However, she’s missing most of the nodes in her armpit, which had been taken when she had a double mastectomy to remove the breast cancer – which is a bad thing as instead of being returned to the body, the lymph now pools in her arm, making it swell (lymphedema).

A major cut like that would have caused a major reaction, and we’d have had to go to the lymphedema specialist, then she’d have to wear the sleeve as well as use the “sleeping sleeve”, and it’s the middle of summer…and it would have been miserable…

At any rate, like I said, every once in a while, the fact of breast cancer in my wife’s life all comes rushing back. In this case it was only an alternate future where that happened, but still, my heart near-to-stops when I think of what MIGHT have happened. Evidence that breast cancer and the aftermath is only a heartbeat away from our new normal…

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